Carson's biopsy results were PERFECT! We're overjoyed! So thankful!
We got word from the Transplant Team they want him to taper down his anti-rejection med to half of what he is taking now. This means he will take his prograf medication just once per day. AMAZING!!!!
For comparison sake -
Carson was transplanted at 8 months of age. He weighed 13 pounds (of which probably 1-2 pounds was water weight). He was a peanut. And he was on 1.5 mg of Prograf each day (0.5 mg three times/day).
Today, Carson is 9 3/4 years old. He weighs 67 pounds. He is now taking 0.5 mg of Prograf each day - one time/day.
The plan(per his new GI doctor) is he'll have another biopsy next December. If all looks good, he'll go off anti-rejection meds completely a year from now. He'd still be on a bile stimulant, a multivitamin and Tums (to supplement his calcium). Easy.
He'll be having labs monthly now for a bit. Not great - but we all want to be sure all is good.
He's never had any rejection. He (as Carson states) has a "happy liver". And that makes us very happy too! His results are so amazing - such a miracle!
2 comments:
What wonderful news to read!!! This makes us so very happy & gives us such hope for Kylee's future!! Hopefully we will get to the point Carson is at someday with Kylee!! We knew Carson was a fighter from the first time we met your family & he keeps showing it more & more with these great news reports!! Looking forward to seeing you guys sometime soon, we miss visiting with you guys!!
Yay yay yay! I am so happy that all of that biopsy stuff ended with good news! So happy for Carson and what this could mean for all of you!
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